Spring

Eyes dilated much?

We are fully in Spring and I am stuck somewhere in January. I don't know where the time has gone.
We have had a number of Doernbecher visits, for Toby's ADHD as well as CF appointments. We have put Toe on Adderall (a medication for ADHD), increasing dosages slowly, and it has really helped improve his ability to sit and focus in the classroom. Because this medication is notorious for reducing appetite and affecting sleep, we are only able to give him doses at 8am and 12pm, covering school but not evening home life. We're still adapting and adjusting, which means many trips to Portland to meet with the doctor about dosage and other matters.

We also had a clinic visit coupled with some other appointments that included an eye appointment and took two days. We stayed overnight in Portland and went ice skating (Toe's second time ever).

Toe actually caught on pretty quickly. He was able to do short stints away from the wall without a parental hand by the end.

(Toe's eyesight is great, by the way). Toby's stomach problems have mostly been resolved as well. Our gastroenterologist is great.

The night before Easter, Toe became very ill. It was a long night and we think the Easter Bunny had a hard time knowing when to visit. We also suspect that he/she did not want to get sick, because there were baskets on our table, but no eggs hidden this year. Toe felt pretty cruddy Easter day, so we stayed home and rested. Whatever he caught triggered a bacterial party in his lungs and his cough got worse over the next week. We now have him on oral antibiotics (this is his first exacerbation in about a year) and are doing three breathing treatments a day.

Toe is now at an age where he realizes how much time three breathing treatments a day takes and he is pretty unhappy with the arrangement. I'm sure the high doses of antibiotics are not making him feel all that great either. He has been temperamental, which is so very unusual for him.We're all doing the best we can and hoping he'll be feeling better soon soon soon.

J and I are tired, too. And maybe a little cranky. We're all trying to take one day at a time and find joy in small moments. J and Toe have begun making jokes together... a pastime that they both enjoy thoroughly, and we have all tried to find the humor in our situation. Toe decided the other night that if he were a vegetable, he'd be a stem of broccoli (because of the curly head). We're laughing where we can. We're getting together with friends as we can, trying to practice self care, and take care of each other...

I could do with a little sun.