Toe has been sick on and off since the end of April and the CF team felt it was time for another "clean out." Toe will be doing a 10-14 day course of IV antibiotics. The first week will be here in the hospital and then we will see if we can take him home and continue IV antibiotics there.
Our transition this time has been a little more gentle. Last time, we arrived and in the hour, they were giving Toe a PICC line. Today we checked in, unpacked, met with our Pediatric Pulmonology intern and talked about meds, and took a walk out to the Sky Bridge before our doctor came to talk to us.
They will be giving Toe the same antibiotics they gave him last hospital stay (Cepepine and TOBI). He will get a regular IV tonight and then have a PICC line inserted tomorrow afternoon (no food after 6am). After that, they'll X-Ray his lungs to make sure the placement is right and to see how his lungs are doing. The doctor says Toe's lungs sound good, but "coarse," which means that he has mucus sort of dangling on the walls of his lungs. The goal of our stay is to get that mucus moved out.
Toe is acting like a pro. He settled in and is acting like he's perfectly happy. We'll see how it goes when they give him the IV.....
Grandma Victoria here. I hope to come visit up there as soon as I am welcome. There's a ton of a lot going on this week, as two of my grandsons are with me for after school supervision. They are here from 3 - 7PM for a week and a half. However, on Mondays , Wednesdays and Fridays most anytime before 2:30 is good for me. Let me know, my starling. Granny Victoria
ReplyDelete