I forgot the power cord for my computer (J mailed it up to us and it is in transit), so this will have to be short. This was our first full day here and we had many tasks to accomplish. Toe had a PICC line inserted into his arm so he does not have to have an IV in his hand. The PICC is inserted under "moderate sedation" and the line runs from his arm up through a vein close to his heart. That way, when fluids are put in, they are immediately dispersed by the heart. Toe loves the PICC line because it means that he doesn't feel blood draws or other things they have to do to him.
So in preparation for that, we met the anesthesiologist, the child life specialist who distracted him during the procedure, and the sedation team. We also met with the in-hospital school coordinator, our CF social worker, the CF nutritionist, Toe had a session with a teacher, had chest X-rays taken, we had two sets of visitors, and Toe had four breathing treatments. It was crazy.
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Cleaning his IV |
Toe's godmother came to visit in the early afternoon and stayed through the PICC insertion. She joked that she was keeping me distracted while the child-life specialist distracted Toe. That wasn't far from the truth. BTW, mild sedation means that they can walk and talk but are a little loopy - sort of on the far end of drunk... I have to say, Toe is pretty adorable this way.
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Post-procedure. The PICC line area. He FINALLY got to eat. |
Other dear friends came in the evening and brought snacks and smiles just when Toe and I were both wilting a little. More soon!
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