Hospital Stay - Day 7: Dad-Dad

 Can I just tell you how much easier this whole experience is with Jason here? I admit, this morning I was kind of cranky when they both became gregarious and silly, but a shower solved that. I actually go to TAKE a shower (and the water is hot this visit - bonus).

 Respiratory therapy came late this morning, so our schedule was a little strange today....

That was as far as I made it last night. Toe fell asleep late and kept waking up whimpering or crying in the night. I think he was overtired. It was a long night for all of us. And this morning Toe started respiratory therapy at 8am to prepare for his PFTs this morning.

So here was yesterday:
We took a walk and discovered the general playground on the first floor. When you have a kid like Toe, you don't automatically run to the playground, first your parents must weigh the risks. Toe stood patiently while J and I talked: This is a playground all kids can use. There must be tons of germs here. Yeah, but there's no one here now. What if we hand sanitize, hand wash, and change his clothes as soon as we're done? He does have a mask on.... But he has the PICC line. We need to keep an eye on him and keep him from climbing..

We decided to risk it. Our poor kid needed some play time.

Toe and Dad played hide and seek. I had to keep reminding him not to climb.

We walked around the rest of the complex until Toe was a little pink and we had to take him back to the air conditioning.

The rest of the day, we had a couple of visitors, and spent some low-key time. We were all tired and ended up watching a number of movies. Toe got a bath in the unit tub (deep with a great undersea mural on the wall. The mural bugs J because it includes fish and animals that do not belong together. Think polar bears and penguins in a picture together).

Toe played happily with a few cups and a large syringe-squirter.

It is wonderful to be together as a family. 

We were all ready to get Toe to bed at a relatively reasonable time and then I went to set up J's fold out bed and broke the thing. We had to wait until J got back from a friend's to fix it (the front desk had called maintenance, but they hadn't come). Then Toe had a hard time falling asleep and before we knew it, it was 11:30. Poor guy, he's the one who suffers most.

Now we're waiting for transport to take Toe to do PFTs. More soon.