We had a pretty quiet day. Breathing treatments, IV treatments, meals. J and I each got some time away from the hospital. We gave Toe a bath in the bathtub for the unit - great warm water (the shower in our room still only gets to luke warm) and even a salmon tub toy to play with. After that, he had his PICC dressing changed. Not his favorite. They pull off all of the tape, sanitize his arm, and then put on new tape. From Toe's reaction, the worst part is the sanitizing. You have raw skin and then the solution stings...It was pretty traumatic. After the dressing change and lunch I left the boys watching football and went to a friend's house to shower and take a walk. Now Jason is out for the evening.
A fantastic lunch and this guy eats the mayo straight |
Some parachute guys, another breathing treatment, a trip to the cafeteria, and a creamsicle later, we are getting ready for bed.
Missing you, loving you, thinking how amazing same old home will feel after this loooong, mellow, surreal, discomforting, if supported time-full-of-surprises.
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