Hospital Day 14 - Slight bump

 We were scheduled for PFTs today (Pulmonary Function Test) at 3:30.  We were waiting in our room, as instructed. At 3:34 our amazing nurse (who has gone to bat for us consistently) came to inform us that there had been a mix-up with transport (on the respiratory department's end) and that even though she offered to send us down there, they said there was no time. She was able to negotiate a PFT time tomorrow morning so we can still go home (if all goes well). And so we wait. Again.

We talked to one of the resident physicians about the plan for tomorrow. If Toe's PFTs are over 100 percent (his baseline is over 100 percent), they will remove the PICC line and send us home (at least that's the plan that we understand). If the PFTs are under 100 percent, they will discuss a number of options including but not limited to: continuing antibiotics for a while longer and/or prednisone. We are trying to stay positive and hope that we will go home tomorrow.

In the meantime, we had a great visit from some friends with young kids who played Legos with Toe and then we had another physical therapy session. This time the physical therapist sat on the back of the car to weigh it down and make Toe work harder. I think they both had fun.

 We were told it was very cold here today. We could see snow on the mountains. From our indoor vantage point, it looked sunny and warm. Toe even asked if we could play outside on one of the patios.

 Uncle Awesome came by this evening and stayed to play some X box games. We sent him home with a large load of stuff. We may actually fit the rest in our vehicle.

The stuff that went home with Uncle A.

After Uncle Awesome left, the room looked much less cluttered.  We had some more friends come over to play Legos this evening.

Toe is very tired today - a late breathing treatment last night, an early one this morning, no nap. We're hoping for an earlier bedtime tonight and the respiratory therapist has come so bed before nine is a possibility.