Friday, October 25, 2019

Hospital Stay: Day 10


Toe had a cranky day today. I don't know if this is just the phase in the stay, or if it was because he fell asleep late and got up early, but talking him into doing anything was dreadful. He didn't want to do treatments. He didn't want to order lunch or even think about lunch. He didn't want to play games or do homework or go for a walk. He hated his dad's riddle. He was just pouty and sour. He DID want to try the new drones that his Grandma Gus sent him and was very frustrated when we told him he would need to wait until evening when everyone had gone home to try it on the skybridge.

Now on Toe's behalf, his version of pouty can range from subtle to grumpy, but it is rarely a tantrum-y or defiant kind of thing. His pouty/grumpy/cranky is manageable and can sometimes be distracted by humor or rest. And I think he has every right to be cranky after more than a week cooped up in a room and a few areas of a hospital.
 

So today we took it easy. As his mood improved, we would push the boundaries a little. When he started to balk, we would snuggle up and do something quiet for a little while. We watched bloopers, Bad Lip Readings, and Honest Trailers. We played some Kinect. I massaged his arm. J got us Starbucks for lunch.
They mop the room EVERY DAY and his socks still look like this by afternoon...

Tired parents
By afternoon, he was feeling better and we did get him to briefly leave his room. He also allowed us to both go away after dinner for an hour so that we could check into the Ronald MacDonald house close to the hospital (the one I stayed at the last two nights was across town - that's where they had room). This place is so close, when J gets tired in the afternoon, or if he gets a business call he needs to take, he can use this place as well. Tonight my job is to do laundry and my reward is a quiet room with a spectacular view. Keep your fingers crossed I can stay awake until it is done.

Toe's arm is improving every day, although he still has some soreness. His cough is much, much improved as well.

And if I haven't mentioned it lately, Jason is an amazing partner. He does a fantastic job of taking care of Toe and I feel so much happier and safer when he is with us. I can manage when it is just Toe and me, but I can relax a little when J is with us. We take care of each other.  I feel so grateful to know these two wonderful human beings.


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