Toe did really well on his PFTs today. His numbers were back up as high as they were before he got sick (but not as high as they were this summer). We were all delighted with the numbers (including the housekeeper who was cleaning the room at the time. EVERYONE here is invested in these kids)
We learned how to play Yahtzee took a walk, had some lunch, and tried (but failed) to play Wednesday Bingo on the live feed (Toe got a prize anyway). Then Toe's teacher arrived for an hour of school.
Forget Bingo, let's snuggle! |
Toby and his teacher have been working on conducting an experiment using the scientific method. Yesterday they made a hypothesis and prepped the lab; today, they conducted the experiment. It had to do with density. They used different amounts of sugar in different cups (but the same amounts of water and food coloring) and then put the water into a test tube to see if the water would all mix together or stay separate by density.
This was the result:
And then this was the result of our kid enjoying the food coloring (don't worry, we didn't care and we KNOW he wouldn't do this in regular school)
The physical therapist arrived and talked to us about how to help stretch and relax Toe's arm. At this point, he has been favoring it so long, much of the pain is coming from sore muscles. The PT also spoke with us about making an action plan for Toe's physical activity to keep him healthy once he goes home. The key is to balance aerobic activity, strength, and stretching. We've been great about the first one, but have largely neglected strength and stretching. So there is another thing (but a very important one) to add to our routine when we get home.
As the physical therapist was there, the nurse came for vitals, respiratory therapy came, my mom and Jamie arrived, as did our friend Greg.
That was my cue. J had 24 hours to see our routine, and I made notes about the predictable parts of the schedule. After being "on" a full week, I packed a bag and left J in charge. I'm staying at the Ronald MacDonald house for a rest tonight. J and our friend Greg (and maybe Grilch and Mav) are having a Dungeons and Dragons night in the hospital.
It is quiet here! I am only responsible for myself. I could stay up all night watching Netflix. I will likely be asleep within the hour. I am so very tired. I go back to the hospital tomorrow morning so J can work...
You'll be glad to know they were *not* eaten by wolves. Nor did anyone fall into the ravine when crossing the icy ruined bridge. Not for lack of trying, however ...
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