We had many visitors today (as well as four breathing treatments, IV treatments every 6 hours, and an hour of school)! Toby's grandparents- Nana and Papa - were first. We took them on a tour of the hospital grounds and had a really nice visit.
Then, my friend AL arrived with lime-coconut quinoa cake. She and I took a walk while Toe played Bananagrams with a volunteer (guess who won? He used the words "vexation" "misshapen" and "bawdy." He goes for speed and quality).
Next came Hope, one of the therapy dogs. She couldn't come into the room because Toe is in isolation, but she stood in the doorway and did tricks and then the Child Life person gave Toe a Hope stuffed dog. That was the moment in the day when I almost lost it. Toe found the experience moving, as well. He has been holding the dog most of the evening.
Soon after Hope left, Uncle Awesome arrived. I left Scott and Toe for a couple of hours to check in to a local Ronald MacDonald house - we were given a room so that J can be closer and work and I have a place to go for respite. While I was gone, J arrived and Toe, J, and Uncle Awesome played together.
Also today, we had a visit from a doctor of hematology. Toe's arm still hurts (remember the superficial blood clot? Toe calls it the superfluous blood clot) - maybe worse than yesterday. They added Ibuprofen and suggested more heat and to be gentle with it for a few days.
I am now working to get J up to speed on the routine (the one I cling to desperately to survive and to keep Toby's mood even) and its quirks.
Tomorrow morning Toe has PFTs. That should help determine how long we will be here. Stay tuned and keep your fingers crossed!
Thank you (or should I say, "fang you"?) for keeping us posted. I'm inspired by all of you, and Toe's vocabulary is, I dare say, superlative!
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